Thursday, August 26, 2010

syndication and award

A third website, Avacara, has approached me about syndicating my content onto their site.  I am honored, really, that my terrible little story, which is not at all special or uncommon, moves people that much.  (It is also on alzcare.net and Wellsphere.)
I also just received an award for this blog, although the award's web page is not up yet. The site medicalassistantschools.org has honored me with a "2010 Top 25 Alzheimer Blogs award" which is pretty exciting.
Of course I remain ranked #1 on Google if you search for "Alzheimer's blog" (or "Alzheimers blog") which is just amazing. People pay huge amounts of money to get to the first page on Google's results.  And I am at the very top on merit. It's humbling.
I'd trade it all to have a functioning, happy, living father.  Although it is nice to be able to say "I am an award-winning, syndicated, top-ranked blogger" with full honesty. 
(Badges are forthcoming for the syndication and the award; they'll be up on the sidebar as soon as I have access to them.)

Update (9-27-2010)  Avacara wanted full ownership of my posts with no compensation (ie, they wanted the copyright) so that's not going to happen.  

Tuesday, August 10, 2010

happy birthday, dad

Today would have been my dad's 70th birthday.  It still seems unreal that he's gone.  The few years he had Alzheimer's seemed to drag on forever while they were happening but now it's been the same amount of time he's been gone and it's like the blink of an eye. 
Where ever he is, it's got to be a better place than he left.
Miss you, Daddy.  :( 

Monday, July 26, 2010

buying a car without my dad....

My beloved car is dying, which makes me sad, so sad, beyond words.  It has served me faithfully for over 16 years, since it had 17 miles on the odometer.   The time has come, the Walrus said, to talk of a new car....but how do I do that without my dad? 
I have never bought a car without his help.  In fact, except for my now-dying Pathfinder, every car I've owned I bought FROM my dad.   (He worked for the Chevy dealership of the same company and I got his discount so it almost counts.)   And now I have to do it without him.  It makes me sad, it makes me mad.
Okay, I get that he'd be 70 this year and retired and it's not like he should still be working there, waiting for me to come in.  But he should be ALIVE, damnit, and able to get into my dying Pathfinder and drive to the dealership of my choice and help me with this task.
But he's not alive and he's not here to help and I feel so lost.
I went up to Meriden Hyundai, which is the dealership he retired from, today to test-drive an Elantra Touring.  I needed to find out if it would bottom out on our driveway before I set my heart on it.   To walk in there and not see my dad through the window....  To see someone else at his desk....  To tell the saleman "I'm Bob's daughter" and see the look of incomprehension because my dad left before he started....  It was heartbreaking.  I was tearing up.  I was asking the guy all these questions...and he was nice enough, don't get me wrong...but I was thinking, "This should be my dad helping me."  And I just felt so sad, and so angry.
No matter what, I have to buy a car.  My Pathfinder's illness is terminal and I'll only be able to stretch out its dying for so long.  And no matter what, I have to buy a car without my dad.
It's been a long time since Alzheimer's made me this angry.  But today, I'm back to wanting to punch Alzheimer's Disease in the face, to beat in its head with a baseball bat.  It stole my father.  I have to buy a car alone.  What else have I been cheated of? 
(And yes, I liked driving the car, and yes it bottomed out.  I don't want to turn this into an ad, so enough of that.)
(image source)

Saturday, March 20, 2010

Alzheimer's and driving don't mix

One of the things my mom and I worried about (needlessly, actually) was how we were going to get my dad to stop driving.   A car salesman most of his life, my dad loved cars, loved to drive.   We used to take "Sunday drives" that lasted a couple of hours when I was a child, just wandering the state before heading to Grandma's for dinner.  Once we saw a small plane crash.  Another time I swear we saw a UFO.   My parents thought it would be educational to park beside a cow field and watch a cow give birth. (Ugh.)
My dad was no dummy and he was one of the rare ones who accepted that he was mentally impaired and did not fight it most of the time.  He "got" that he had problems doing things.  He might get angry when he discovered he couldn't do math anymore, but he would stop trying once he knew that was gone.
On his own, he slowed down how much he drove and where he went.  He only went to places he already knew how to get to and if he was with my mom, she drove (which NEVER in my life had happened before--my mom only drove when my dad wasn't in the car).  Eventually he stopped going on Route 5 (taking a hugely convoluted route to my house to avoid it) and started walking to a few places that were really close.
One horrible day my mom got a phone call at work (just a few months before she had to stop working to be with my dad full time).  My dad had gotten into a car accident and fled the scene.   It was his first, and only, car accident.  He was going to Agway to get bird seed and I think something for the garden.  At a stop sign, he pulled out and hit someone and just kept going.  I think he panicked.  He didn't really "flee"--he just drove to Agway, where the cops caught up to him.  The clerk who waited on my dad every week came out and talked to the cops, and they managed to get my mom's work number and call her, and she left work to go there, and my dad didn't get charged once the situation was explained by the clerk and my mom.  It was just a fender bender, no one got hurt.  Thank all the gods.   My dad never drove again.   We did not order this, he decided on his own.  About six months later, my dad announced that he was selling his truck to his best friend's son.  If he missed driving, he never said.
We were grateful that he didn't hurt anyone and that we didn't have to fight him or lie to him to get his keys.
So I'm not at all surprised that Healthday said recently that people who have been recently diagnosed need to be monitored very closely when they drive, although Healthday seems more concerned that dementia patients will get lost than that they will hit someone.
(A) study of Alzheimer's patients suggests the risk of getting lost -- even on familiar streets -- may be greater than once thought. Even with early dementia, there may be no safe period behind the wheel because the disease is unpredictable.
And just think how many people don't get diagnosed promptly. I am sure, I know in my heart, that my dad was impaired for years and my mom and I were in denial.
But the study only looked at MISSING drivers--not car accidents. I think some reevaluation is needed to look at other dangers as well.
Of 207 drivers with Alzheimer's who went missing while driving, 32 died and 35 were found injured, the research showed. Another 70 were not found at the time the data was analyzed. Some had driven for almost two days and covered more than 1,700 miles while lost. Most had set off on routine trips....
The Alzheimer's Association offers a web-based program called "Comfort Zone" that families of Alzheimer's patients can use if the person can still drive safely in familiar places. The driver agrees to limit driving to a "comfort zone," and a global positioning system (GPS) monitors driving. If the driver leaves the area, the family is notified in real time.
(image source.  article source.  article screenprint.)
driving with Alzheimer's

Alzheimer's blog roll

I want to update my list of blogs that talk about Alzheimer's.  If you are a reader and have such a blog, or website, please send me the URL (even if you have before) and I'll post it on my sidebar.  I only ask that you publish a link to here on your sidebar.   Thanks.