I read Still Alice last night. For those of you not familiar with it, it's a novel written from the perspective of a 50-year old woman with early onset Alzheimer's.
I was expecting something more like Flowers for Algernon, especially as the title character starts off with a PhD and as a tenured teacher at Harvard. If I was writing such a novel (and I still might), I'd do it that way. If you haven't read Flowers for Algernon, it's a story about a mouse named Algernon who is made incredibly smart, and then a human named Charlie who goes from basically mentally retarded to genius by the same process, and it's all told in journal form by Charlie. The unreliable narrator is a great tool when properly done.
I am proud to say that I did not cry, even when she got diagnosed, until page 111, when she started talking about butterflies. My dad loved butterflies long before (and after) his diagnosis, and we covered his memorial picture board in butterfly cut-outs. I don't think, however, that Alice took me into any uncharted waters. They were all familiar. She can't find the bathroom and pees on herself and feels shame. She forgets one of her daughters. She makes mistakes at work and doesn't realize her poor performance. She was never violent like my dad, but that's rare. I expected more frustration and more control issues.
Two things did bother me, that were left hanging. She forgets to go to her support group meeting, and she can no longer deal with her e-mail to respond to her EOAD friends. It doesn't seem like anyone ever takes her to the meetings or that she ever talks to those people again. Then she leaves the suicide instruction document open on her computer and no one ever remarks on it or looks for her vial of sleeping pills.
The suicide pact was probably the best part of the novel--her way of checking if she's still cognizant of her surroundings. She puts a series of questions on her Blackberry that she has to answer every morning at 8 a.m. and if she can't, she has to go to the Butterfly (suicide) document on her computer and follow the instructions immediately. At first the answers to the questions are detailed and crisp--the exact address of her home and office, the exact birthday of her daughter. Then they get less so, until finally she is simply saying what state her home and office are and getting the birthday completely wrong. But she doesn't even realize it, of course.
I didn't like the character of her husband very much.
His refusal after a while to exercise with her, the whole Sloan-Kettering thing--he was a jerk. Their marriage felt fake. I never thought they loved each other, there was no passion. They never had sex--implied or implicit, offscreen or on. And I would think that's an important part of EOAD--do you still have sex?
As far as a character study of her, and of the disease, it was fairly brilliant, but all the other characters were flat, cutouts moving through her world, even when she is barely diagnosed and showing symptoms.
I would give this book 4 out of 5. It's really good, but it could have been amazing.
I was thinking about the book after I finished it, and how Alice is treated by her co-workers and friends after she admits to her diagnosis, and I realized that it would be better to lie to the world and say "I have a brain tumor." My great-uncle had a brain tumor that caused dementia and everyone rallied around him. My dad had plain old dementia and he was a pariah.
(book cover from Amazon, butterfly montage from www.mgcpuzzles.com--we used it on my dad's board)
The four flowers from my team. The colors got confused somehow, my friend's shouldn't have been yellow which is caretaker but they told us yellow was supporter.
My hubby with his Alzheimer's shirt on.
My mom with her Alzheimer's shirt on.
I found this cool rock on the beach with a cross on it. I'm not Catholic but my dad was so I kept it.
Me with some of our flowers.
Part of the Memory Garden. Blue was for people who had Alzheimer's.
3 memory flowers for my dad, planted in my yard. They are fun, they spin like pinwheels.
I raised, between my tag sale and Facebook, almost $400 for the walk (and they gave me 4 t-shirts, even though it's $100 per shirt). It was very crowded. The day started out rainy and horrible but by the time we got there, it was gorgeous and they said it was the biggest turnout ever. When I tagged my pictures on Facebook with Lighthouse Park, it said 1077 people were checked in there--and I didn't use FB check-in there (I used FourSquare) and neither did anyone with me. I'd say over 2,000 people.
My father's 1253-day journey through Alzheimer's Disease (AD) and my feelings about it. All material is copyrighted by Gevera Bert Piedmont (except where noted and where quoted from other sources); please do not repost without permission.
"The cost of Alzheimer's? Everything you ever owned, everything you ever thought you would get, and things you never even thought about."
"It's a long, slow slide into oblivion, with no brakes."
"If this was a paper journal, the ink would be running with tears."
"Imagine a really beautiful, perfect statue, left out in the wind and rain for centuries, to be worn away, until it’s only retained the shape of a person, not any of the individuality. That’s what Alzheimer’s did to my father. It wore him away, all the sharp edges and crisp points that made him Bob, who loved his family and his pets and his raspberry bushes, and turned him into a fearful person with a vague and confused stare."
"It's a nasty disease, surrounded by shadows and small, largely unseen tragedies."--Terry Pratchett
This is a reminder that Alzheimer's disease affects real people, real families. My dad wasn't a monster, just a man whose brain was slowly eaten by a terrible disease.