Last week I sent a brief email to the paper, telling them shamelessly how I am a top-ranked, syndicated, award-winning blogger about Alzheimer's and I'm having a huge tag sale this weekend and giving the money to charity. And they called me yesterday. Interviewed me today. I tried to come up with some thoughts to share; in no particular order, here they are:
There are no Alzheimer's suvivors. There are no hollywood-style moments of perfect clarity. From the moment of diagnosis--from before then, even--it's all downhill.
When I was a teenager, several people around me died of cancer--my gandpa's sister, my friend's dad, my grandpa--and I thought cancer was the worst thing ever. And if I thought about death, I wished with all my heart 'please don't let it be cancer.' Now I've seen Alzheimer's Disease and it's so much worst. There is no proper goodbye with AD. It's just a , and every time you think it can't possibly get any worse, it does. Now I wish not to get Alzheimer's with a fevor unknown to my teenage self.
I'm sure there is a worse disease out there than AD. I don't want to know. Honestly. I don't even want to imagine it.
Living with Bob and "Al"
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